Abstract
Individuals living with a traumatic brain injury (TBI) often rely daily on family support for their activities. When suddenly assumed by family members, caregiving roles can significantly disrupt family dynamics. Such responsibilities can extend over many years, and challenges may increase as both the caregiver and the individual with TBI age. Although implementing interventions to support caregivers of individuals with TBI (TBI caregivers) is essential, little is known about the specific needs of TBI caregivers. This study documents and prioritizes the needs of TBI caregivers. Based on the results from a mixed systematic review on the needs of caregivers of adults living with a TBI, the Technique for Research of Information by Animation of a Groupe of Experts (TRIAGE) method was used in two focus groups conducted with community workers (n=4) and TBI caregivers (n=5). TRIAGE combines both individual and group phases, aiming to reach a consensus on most priority needs. Participants were recruited among community workers and TBI caregivers from organizations that provide services to this population. Both groups identified needs for peer support, information on healthcare and administrative procedures, mental health support, and a guide to navigate the healthcare system and access resources as a priority. TBI caregivers also emphasized the need to prepare for transferring caregiving responsibilities, adapt housing, and continuous follow-up as additional priorities. Building on the prioritized needs, this study will guide the development of interventions tailored to the challenges faced by TBI caregivers.
Presenters
Pascale SimardPhD Candidate, School of Rehabilitation Sciences, Université Laval, Quebec, Canada
Details
Presentation Type
Theme
Social and Cultural Perspectives on Aging
KEYWORDS
Caregivers, Traumatic brain injury
